Information, fun and more fun

The mayo Clinic in Scottsdale Arizona. It was so great to be able to come here and get a second opinion. We meet with the DR Nina Karlin. We both liked her right off and it was not just because her name was Nina ( what my grand kids call me ). She was just so with it. We left with her having my sternum biopsy slid and my lung biopsy slide being sent to the Mayo clinic in Rochester. She wants them all run again and check for Her 2 also. I guess one of mine came back once her2 positive. This was the first we had heard that. I have had so many different diagnosis on my tumors. It is important to get it right as this will dictate the type of treatment that is best for my tumors. The majority it has come back a triple negative. I believe it will be confirmed once again.
I am having a CT scan tomorrow to update that and see what is going on in my lungs. I cant feel anything so I cant say of I think that more is going one. Once Dr Karlin has this information she will give her opinion on what form of treatment I should have. She did say that I should start treatment and not wait to do so.

Dan and I meet today with a DR at OHSU that is getting ready to start a drug study for triple negative  breast cancer. He thinks I would make a good candidate for this. It would be in the form of 2 different pills ( YES) no port. He said it has some side effects that come about the first 3 months and then they go away.compared to other drugs that get worse over time. They have found that one of the pills goes after the tumor markers and when it would change to become resistant the other pill does not allow the second morphing. It sure sounded good to Dan and I. I would go up the first couple of weeks a couple of times a week and then it would get to about every 2 weeks. The DR said it has been showing some great strides.

I am very thankful to all the Dr's helping me to make the best decision for me.
Dr Tiffany for encouraging me to look into other options and get the second opinion.
Dr Karlin for looking into my tumors more
Dr Martin for being so excited about the new study
Dr Gordon for his late night calls to just check on me and see how I am doing.
Dr Leonard for giving me back my boobs. He is an amazing Plastic surgeon.
If I ever get the guts up I will post a pic of my new boobs on this site.

Dr Vanderburg for always helping me to seek more tests when everyone said it is all good.

Dan and I had a wonderful time in AZ. We decided to make it a mini vacation and we drove to Sedona. It was beyond beautiful.

So many beautiful rock formations in so many colors

When I took this picture and walked back to the car. My dress hem was full of burs from some grass that was growing next to this cactus. Dan had to help me pull them off my dress so I could get in the car.

We finished off the evening with the BEST Italian food ever. The owner wrote this book on Italian cooking. I usually come home with a new pair of earrings as my vacation memento. This time it was her cook book.

 

 

I will have to post later what the decisions are that we come to after all this new news. What I do know is that my trust in the Lord has not wavered. I know that he is in charge and will continue to guide Dan and I on this journey of life together. This is not something I am doing on my own. Dan is my constant companion, My strength and so much more. He sends me scriptures on my phone almost every day. He is my encourager.  I love this man