This a song that Nydrie Edwards posted today on her facebook. Thanks Nydrie.
I did not know what to write about today, but felt like putting my thoughts down on paper. I guess that today I am a little confused and not sure how I should feel. So what I really need today is just peace in my mind and my heart.
I got a call from the Mayo clinic today stating that they did more stains on my tumor and that they had 2 pathologists read it and they both agreed that it was a triple negative cancer.
I have had so many different diagnosis and with each one your cancer is treated a little different.
1st triple negative
2nd progesterone positive ( slightly)
3rd estrogen receptor positive ( slightly )
4th triple negative By 2 pathologists.
SOOO, the study I was going to do at the Mayo clinic is now being changed back to the original one that I was going to go there for. I have been on some meds that they will probably take me off of with this diagnosis. I am a little bummed because that means that I have been having basically no treatment for about 5 weeks. Because the drug I have been on is for estrogen receptor positive cancer.
I know that they will get it all worked out, but truly a bit tearful. I m feeling a bit overwhelmed today. Tomorrow is a new day.
New day today: I think I figured out what I was feeling. I have been taking Letrozol for about 5-6 weeks. I was told there was a 1% chance it would slow down my cancer ,then I was told that there was a 10% chance it would slow down my cancer. Then yesterday I was told that it would not do anything. I think that even though the numbers were low I was still very hopeful and yesterday I lost my hope for that drug and had to be honest with my self that I was REALLY hoping that it was going to do something. That I would go back in for a CT scan and they would say wow it is smaller or wow it did not change at all. These are the bumpy roads I have talked about. Now that I know what I am feeling I can organize it , look at it, analyze it and get over it and move on. :)
Cris, you are so amazeling strong. You will get the treatment that is best for you. All these doctors are looking out for you.
ReplyDeleteLove you so much
Cris, I agree...you are an amazing woman and though our paths cross only once in awhile (thanks Jim and Sophie!), my heart aches that you have to go through this battle. I am believing God to redeem every inch of this battlefield you are on. I know many wonderful ladies (& men) are praying for you! In the midst of this, hang onto your lifeline, the Vine that gives you support and sustenance. And the people who love you so dearly stand with you. Know you are dearly loved!!
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