could use a time out.

Well, my MRI certainly did not come back they way I wanted it to. I had so many tumors in my brain that they could not count them. The DR's all got together and had me in havinf radiation treatments with in 2 days. They make a real weird masck that holds you head perfectly still as it is strapped down to a radiation machine. It only took about 10 minutes at the most and this counted walking in and going down the hall , having treatment and getting back out.  I was going to have 15 treatments in a lower dose so that it did not hurt my brain as much as a 1 week treatment could do.
They also immediately put me on a 24 hour very high dose of prednisone.
with in 2 days, I could hardly walk as the prednisone kicked in with the radiation. I walked into the hospital every day crying, cryed through the treatment and  cryed my way home.I spent about the whole 3 weeks in my bed. Luckily I love my bed.  On about day 5 they said that they thought I was having a bad reaction to the steroids and needed to get me of of them. that took a week to get me off of them and that was with me hurrying it up by about a day and a half.
I had a small seizure in my left leg when I was getting off the prednisone. no pain just weird.

I am doing waaay better now. I am still a little dizzy when I walk, but even that is getting better.My legs feel a little heavy. OH YES and ALL my hair fell out in one day. crazy.but least of my concerns. The radiation burned my ears and forehead the worst.
I have discovered that I am married to a iron chief. I had no idea what a good cook he is. When I am feeling better I think we will need to share the cooking duties. He is amazing. Not just in cooking, but in encouraging me each and every day. He makes me feel like I can do anything and thanks me for taking the treatments. What a man.  What I really need to say is what a Man of GOD. I am truly blessed by my husband. I think if I worry about anyone in would indeed be Dan the most. So when you are praying for us please add a big dose of pray for him. He is doing EVERYTHING
As always great things are going on in my life also.

The twins are here. Rachael made it look like it was so easy to have these little men.
Michael and Melissa are expecting the middle of next month. So the excitement just keeps going. I cant wait to hold their little munchkin in my arms . God is good

I dont believe in spooks, I dont believe in spooks , I dont believe in spooks

This is what I looked like hanging our of a MRI machine. Next time I swore I will ware the socks

 

 

Even if I don't believe in spooks does not mean I cant be spooked. I had to have a MRI today of my brain. My left leg has been real week and I have had alot of head aches. I have explanation's for it all, but yes it does still spook me.

After my last treatment of cisplatinun my magnesium count dropped off the charts and I have been having IV magnesium infusions 2-3 times a week for 6 hours each time. It is like having a second job and the one I have is busy.

I started a new chemo last Thursday and I will take it 2 weeks on and 1 week off. So far so good. I will be on it a long time. NO real end date.

The pills I take for nausea say that they can cause HEAD ACHES

my low magnesium really messes with my muscles, cramping and I believe weakness in my left leg. Other wise I feel great!!!

 

 

I did get 2 new little grandsons one was born last week on the 13 and the other on the 14. Twins that wanted their own birthdays. They love being all

cuddled up to each other and are so beautiful. I am so proud of Rachael and Nolan they are wonderful parents to their 3 boys.

Thayne 5.5 lbs 18 1/2 inches long

Quinn 6 lbs 19 1/4 inches long Rylan just turned 2 on the 27th. He is a real little ham. Such a funny little man. He has been running in the hall in the morning yelling BABIES. I think he likes them

--These-- are a few of my fav- o- rite things

Can you hear the musically tune for these photos

missing Rylan in this photo

Quinn & Thane

Mr Rylan

Princess Aubrey.

 

It has been awhile since I wrote on my blog. I have been doing great. I told my oncologist today that I felt better than I had in a couple of years. She told me my white count was real low and in getting chemo today might make it so they would have to put my next treatment off. That I would be in danger of a infection because of it. We talked a bit. She said I could come in for the next 4-5 days and get a shot or I could come in tomorrow and get a hefty Nulasta shot. It would be a bit of over kill but would have to go in less. I went on to tell her that I was going to get to spend several days with my little grand kids in Bend starting this weekend. So we quickly agreed to do the over kill Nulasta shot tomorrow. She said if I got to feeling very tired and just out of energy I could come in on Thursday or Friday and get a blood transfusion. That this would help me to feel good for my time with my grand kids. 

I love that she understands how important my family is to me. She helped me in 2010 to be able to move my treatments around a bit so I could go be with my family over in Bend for the 4th of July. That was a great weekend Dan was the master quesadilla maker.

 

I am getting all my little grand kids at the River House

 ( that is what Jacob has named it). I think that I am going to call it the river house from now on.

I cant wait to read and cuddle each and everyone of the. I am sure there will be lots of giggles, crying ( someone will get hit by something by one or other of the kids ) wrestling, bathing, swimming, eating and pictures taken. I feel like a kid this spring break . I cant wait to spend that time with them. My sister will be there also and a friend of mine form Jr high school. Hope my niece and her daughter Marlie. That would be the topping on the cake. I will post pictures.

 

I have my next treatment on April 8th and a CT Scan April 1st. Not superstitious. I am going to get great news from that CT scan. Feeling the peace of the Lord everyday and planning on back packing with my little grand kids when they are teenagers.

 

 " I have a plan for you says the Lord a plan with a future and a hope for good and not evil"

 

Please pray for my Aunt Elaine she just started starting chemo for colon cancer, and my bosom friend Roses sister has been diagnosed with lung cancer and is starting Chemo also. Thank you all for your prayers. I always feel them and I know they will also.

The Lord bless and keep you all.

Cris

 

 

 

Every thing H

New home , new hair cut. well that is it for the H's.

I want to start this with saying that my CT scan showed that 2 of the very small tumors in my lungs got smaller and one stayed the same from just 2 chemo treatments. When I am all healed up from my surgery I can start chemo with a renewed vigor knowing that what is am going through is worth it.

My surgery went well I have a healthy right boob again and a giant scar down my back that looks like a crescent moon. If I were younger I would probably try to hide it with a tattoo of guess what ( a crescent moon )....... but since I cant see it and my amazing husbands rubs lotion on it for me and tells me how beautiful I am. Well It is going to just stay as it is.

Dan and his brother Shawn have both taken on with much vigor getting this home done. Shawn must have inherited the loving heart that Dan did as they both want to get it done for me. Shawn and Dan  talk each night on what the next plan will be and then Shawn is here first thing in the morning helping to get our home in order. What I love the most about it is listening to the two of them having such a great time together. This will be good memories for them. laughing and singing to 70' music. and making everything seem funny. ( no drugs involved).

The sun is peeking through the clouds and I am just feeling so blessed. I gave myself a long sponge bath this morning. I have a antibiotic pump hooked into my port for a week or so more. It goes off twice a day to make sure that I don't get any infections from this last round.

Today I feel so positive about my future. I heard a servied this morning about not getting what you deserve. It really struck a cord with me. I have been asking the Lord to heal me and really thinking that he is going to do it ( most of the time) then I think ... I know people who were such better Christians that I am and he did not save their lives from cancer, he let them go home early. Surely he wont save mine either.
Then the service said that the Lord does not give us what we deserve, but what his will for us is regardless. there is no scale of 1-10 of how good a Christian we were our whole loves. If that were the case I would have been condemned and burned years ago for the life I lead. Then his sweet spirit comes in and says that it is not by my performance, but his love for me his GRACE. WOW!!! That is so big. I need to hold onto it every day. I am pretty good at that, but be reminded and in turn ran to him again today and ask once again to spare my life and take my cancer away.

So this explains the H for house
The H for hair is that mine is thinning so I went to my hair gal Heather and had her take it down to the nubbins. So I am back to my real short hair. That was if it just gets really thin the thin spots wont be so noticeable. If it all comes out it will be easier also.
ok. H can be for Heather also :)

The scoup

Well here I am again getting ready for another surgery. I usually call everyone and tell them, but this is starting to get really old.
So I have not called everyone. I am going to have surgery on Friday. I will be in be in the hospital for a few days. You might be thinking ... wow she would do anything to get out of living at the hotel :) No I would not do this.

I had 36 radiation treatments on my right breast side back in Nov, Dec, Jan of last year. I had another breast surgery on August 4th of 2012. It has never seemed to really be right compared to the other surgery's and how much I loved my boobs. I did not love this new one. Lately it was getting a little more misshapen. I made appointment to see my plastic surgeon on the 20.
I was suppose to have a Chemo treatment on Monday the 7th, but the evening before I had what seemed to be a leak in my right boob. Kathi and I went to see my plastic surgeon on Monday morning to make sure it was ok to have Chemo that I was not getting a infection or something. Well it was the or something.
My implant was pushing to pop through my radiated think skin and had sprung a leak.
The Dr felt like it was something that need to have some kine of urgent attention. He talked with my oncologist and the two of them agreed no Chemo that day for me and not for 6 weeks after my surgery. I am going to have to have them take some skin and muscle from the right side of my back and pull it around to the front to give me  some strength in my skin. They will take the implant out and clean it all up and then put in a implant also.
I will admit I was pretty glad not to have to have chemo on Monday. We should be moved in and all comfortable in our new place long before I have to have another treatment.
I did have to have a CT scan on Monday for my oncologist. She wanted to look and see what the treatment had been doing or not doing........ I am voting doing.
_______________________________________________________________________
I have a cousin whose daughter is getting married this week in Pendleton. I have just know FOREVER  that I would be at her wedding. It was a given.
Well I knew that I would not make it because of the chemo. I let them know that I would not make it.
I just really really want them to know how much their family means to our family.
They have always been so supportive to my whole family. From my parents down.
We love you Mark, Marilyn and family. I pray that Shakina's wedding is blessed by the presence of the Lord. I also pray that you would feel the love coming from your Salem family. Many tears have been shed about not being able to be at the wedding.

round 3 of chemo -1 new treatment down

 

Well I did my first treatment a week ago on Monday. It was easy to go in and get it. It took about 4 hours all together.

 

I thought I was breezing through it and on the 3rd day I was ready to go shopping. Then at about 11:30 I sat down and cryed and needed to go home. Overcome by emotions (prednisone) I went home and slept. Then each day seemed worse. I went in yesterday and they said that I had cough a cold on top of the chemo. Bad cough. I am taking strong antibiotics and hope to keep this reined in. My low blood count days start today and for about the next 4 days. Needless to say I am staying home and away from anyone sick. Even though I was passing mine around when I thought it was from the chemo.

Our house is all packed up and it will get loaded up o Saturday. We move to the hotel on Saturday and should be able to take possession of our new place on the 12 or 13th.

Then we will have about 2-3 weeks of work and then we can move in. We still wont have a kitchen in, but to just get settled into our new place will be great. The new kitchen will be in in about 6 weeks from closing. I will post before and after pics. Dan and I are building and fluffing a very comfortable nest for the two of us to rest in. We think that we will have more time to be with our family and friends. Not having a yard or a big home to always consume our time and energy. It is better spent else where.

 

 

 

Hugs from Heaven

I got a giant hug in the mail today. I got home and there was a package on my front door step. I opened it and it looked familiar. I could still make out a faint design in black.   started reading the letter then I had to stop. Dan came in the room and he sat down and I read it out loud to him. We both cried. It was truly a hug from heaven.
Thank you Aunt Judy. ( yes it is a God thing )

My aunt has a life long friend name Jan. I send her my blog and she reads it to my aunt Judy.

My aunt Judy sent me a package with a letter in it. I want to put a portion of her letter to me in this blog.

" I don't know all the time line for this BUT I must tell you what God showed me: I was so cold my butt and legs were really cold , so I got to thinking what I had to wear that would be warm and cover my behind. I mentally went Thur my inventory then I remembered this cozy shirt your Mom gave me a long time ago. She and I always got so depressed when Nov rolled around. She knew I always fight the winter/ Nov blahs by waring RED. I used to ware red lipstick, red nail polish, red sweatshirts and even red boots ( when I was young ) Any way I went and got it out of the drawer and brought it out here to the living room, intending to wear it. When GODs holy spirit said ( in my head)" not you, that is for Crissy. Just as sure as I am sitting here at the big table, by the big windows His voice. I knew that voice I have heard it many times in my life. There is no doubt because at that time of the day & all of this was before Jan had gotten home and called & read your blog to me. Of course now I know HE told me those words.

Darline, when you are cold warn out and physilogically drained , put this on and know in your heart it is hugs , loves those shared special times between you and your Mom. You are so precious to your parents, as their baby girl, and you are even more precious yo your heavenly father. Feel all their arms around you holding you in their eternal love.
Little did your Mom or I know that this cozy shirt ( she wore in a pic with your Dad) would one day be a hug from heaven to you our dear Crissy. 

Ok now you can see why we cryed.  I will ware this shirt and feel close to my Aunt Judy. My Mom and Dad and my heavenly father.
Thank you Aunt Judy for the amazing hug in a package. I love you
Crissr.


My spell check is not working :)